Steele, Linda, Swaffer, Kate, Siciliano, Hope, Rose, Evelyn, Mitchell, William John, Kobier, Karen, and Bailey, Brenda (2023) Reparations for people living with dementia: Recognition, accountability, change, now! Dementia, 22 (8). pp. 1738-1756.

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Abstract

There is a significant and longstanding problem of harm to people living with dementia in long term care institutions (‘LTC institutions’, referred to by others as ‘care homes’, ‘nursing homes’, ‘long term care’, ‘residential aged care facilities’), along with a failure to redress the harm or hold people accountable for this harm. This article reports on an Australian project that found reparations must be a response to harm to people living with dementia in residential aged care. Using a disability human rights methodology, focus groups were conducted with people living with dementia, care partners and family members, advocates and lawyers to explore perspectives on why and how to redress harm to people living with dementia in Australian LTC institutions. Researchers found four key themes provide the basis for the necessity and design of a reparative approach to redress – recognition, accountability, change, now. The article calls for further attention to reparations in dementia scholarship, with a particular focus on the role that can be played in the delivery of reparations by the LTC industry, dementia practitioners, and dementia scholars. Ultimately, this article provides a new understanding of responses to violence, abuse, neglect and other harms experienced by people living with dementia in LTC institutions, which centres justice, rights, and transformative change.

Item ID:	79788
Item Type:	Article (Research - C1)
ISSN:	1741-2684
Keywords:	neglect, abuse, violence, human rights, law, reparations, redress, justice, residential aged care, long term care
Copyright Information:	© The Author(s) 2023.
Date Deposited:	22 Aug 2023 00:36
FoR Codes:	48 LAW AND LEGAL STUDIES > 4805 Legal systems > 480501 Access to justice @ 30% 48 LAW AND LEGAL STUDIES > 4803 International and comparative law > 480307 International humanitarian and human rights law @ 30% 42 HEALTH SCIENCES > 4203 Health services and systems > 420301 Aged health care @ 40%
SEO Codes:	20 HEALTH > 2005 Specific population health (excl. Indigenous health) > 200502 Health related to ageing @ 50% 23 LAW, POLITICS AND COMMUNITY SERVICES > 2301 Community services > 230102 Ageing and older people @ 50%
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