Family-centred care in cystic fibrosis: a pilot study in North Queensland, Australia

Smyth, Wendy, Abernethy, Gail, Jessup, Melanie, Douglas, Tonia, and Shields, Linda (2017) Family-centred care in cystic fibrosis: a pilot study in North Queensland, Australia. Nursing Open, 4 (3). pp. 168-173.

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Abstract

Aims: The aims were to: (i) examine perceptions of family-centred care of parents of children with cystic fibrosis and healthcare professionals who care for them; (ii) test design and tools in a regional population.

Design: Quantitative pilot study of existing questionnaire.

Methods: The methods involved were comparative, cross-sectional survey of parents of children with cystic fibrosis and health staff in North Queensland, using “Perceptions of Family Centered Care – Parent” and “Perceptions of Family Centered Care – Staff” questionnaires; and descriptive study of tools.

Results: Eighteen staff, 14 parents (78%, 61%); using Mann–Whitney U, showed no significant differences in scores in categories: ‘support’ ‘respect’, ‘collaboration’. Comments about suitability of questionnaires varied, but were largely positive.

Item ID: 48954
Item Type: Article (Research - C1)
ISSN: 2054-1058
Keywords: cystic fibrosis, family-centred care, nurses, nursing, rural and remote health care
Additional Information:

This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. © 2017 The Authors.

Funders: Australian College of Nursing
Date Deposited: 29 May 2017 22:42
FoR Codes: 11 MEDICAL AND HEALTH SCIENCES > 1110 Nursing > 111099 Nursing not elsewhere classified @ 100%
SEO Codes: 92 HEALTH > 9205 Specific Population Health (excl. Indigenous Health) > 920501 Child Health @ 100%
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