Olsen, Quita, Dyda, Amalie, Woods, Leanna, Lobo, Elton, Eden, Rebekah, Krahe, Michelle A., Richards, Bernadette, Pather, Nalini, McGee, Lesley, Sullivan, Clair, and Pole, Jason D. (2025) Worldwide willingness to share health data high but privacy, consent and transparency paramount, a meta-analysis. npj Digital Medicine, 8. 540.

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Abstract

Healthcare delivery is under strain, and the reusing of routinely collected data promises improved outcomes. Still, concerns remain about the public’s willingness to share their health data. This study examines worldwide willingness to share health data for secondary purposes. Five electronic databases were searched for eligible studies published since January 2020. Articles were included if they quantitatively examined the primary outcome; the public’s willingness to share health data for secondary use, while secondary outcomes included demographic and perception measures associated with willingness to share. Sixty-five articles reported a wide range (24–100%) of public willingness to share resulting in a pooled estimate of 77% (95% CI: 71–82%) among predominantly high-income countries. Participants remain concerned about privacy, consent, and transparency. Future work should consider public education, assessing diverse populations and developing and deploying a validated tool measuring willingness to share data.

Item ID:	88898
Item Type:	Article (Research - C1)
ISSN:	2398-6352
Copyright Information:	© The Author(s) 2025. Open Access This article is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License, which permits any non-commercial use, sharing, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if you modified the licensed material. You do not have permission under this licence to share adapted material derived from this article or parts of it. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s CreativeCommons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder.
Date Deposited:	24 Sep 2025 04:57
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