ERCAL, a regional initiative for rare diseases in Latin America and the Caribbean
Gonzaga-Jauregui, Claudia, Salazar, Carlos, Macdonald, Jennifer, Reichardt, Juergen K.V., and Groft, Stephen C. (2024) ERCAL, a regional initiative for rare diseases in Latin America and the Caribbean. Rare Disease and Orphan Drugs Journal, 3 (1). 6.
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Abstract
The importance of establishing programs to address the challenges of patients living with rare diseases has been recognized internationally, yet many countries, especially in low-and middle-income regions, are lagging in the recognition of the challenges and needs of patients and families. To improve this situation, the Enfermedades Raras en el Caribe y America Latina (ERCAL) initiative was established in 2020 with the vision of bringing together patients, patient representatives, organizations, researchers, clinicians, regulators, and all interested stakeholders in the rare diseases ecosystem under a common collaborative platform to sum efforts to improve the lives of patients and families living with rare diseases in the Latin American and the Caribbean region. Over the last three years, we have been working consistently to establish an agenda of priorities and objectives to guide the work of the initiative and address the major challenges faced by the rare disease community in the region.
| Item ID: | 87313 |
|---|---|
| Item Type: | Article (Research - C1) |
| ISSN: | 2771-2893 |
| Keywords: | CEPCAL, collaboration, ERCAL, Latin America, precision medicine, Rare diseases |
| Copyright Information: | © The Author(s) 2024. This article is licensed under a Creative Commons Attribution 4.0 International License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, sharing, adaptation, distribution and reproduction in any medium or format, for any purpose, even commercially, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. |
| Date Deposited: | 28 Nov 2025 05:25 |
| FoR Codes: | 42 HEALTH SCIENCES > 4202 Epidemiology > 420202 Disease surveillance @ 100% |
| SEO Codes: | 20 HEALTH > 2004 Public health (excl. specific population health) > 200404 Disease distribution and transmission (incl. surveillance and response) @ 100% |
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