Finding new bearings: a qualitative study on the transition from inpatient to ambulatory care of patients with acute myeloid leukemia

Nissim, Rinat, Rodin, Gary, Schimmer, Aaron, Minden, Mark, Rydall, Anne, Yuen, Dora, Mischitelle, Ashley, Fitzgerald, Peter, Lo, Christopher, Gagliese, Lucia, and Zimmermann, Camilla (2014) Finding new bearings: a qualitative study on the transition from inpatient to ambulatory care of patients with acute myeloid leukemia. Supportive Care in Cancer, 22. pp. 2435-2443.

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Abstract

Purpose: Treatment of adult acute myeloid leukemia (AML) is intensive, with induction treatment initiated in an inpatient setting and subsequent consolidation therapy often conducted in an outpatient setting. The purpose of the present qualitative paper is to provide insight into the experience of patients in the transition from inpatient to ambulatory care.

Methods: Participants were 35 AML patients who were interviewed about their experience of the illness and treatment. Utilizing the grounded theory method, we describe the adjustment of participants to the transition to ambulatory care.

Results: As outpatients, participants described adjusting to the intensity of ambulatory treatment and to the need to assume greater responsibility for their care. They also expressed a growing desire to understand their long-term care plan, compared to their preference to focus on the present prior to discharge, and they were struggling to construct a new sense of identity.

Conclusions: AML patients are now leaving acute care settings sicker and earlier. Considering their perceptions can inform interventions to facilitate adjustment during the transition to outpatient care.

Item ID: 86479
Item Type: Article (Research - C1)
ISSN: 1433-7339
Copyright Information: © Springer-Verlag Berlin Heidelberg 2014
Date Deposited: 12 Aug 2025 00:22
FoR Codes: 42 HEALTH SCIENCES > 4203 Health services and systems > 420316 Palliative care @ 30%
52 PSYCHOLOGY > 5203 Clinical and health psychology > 520399 Clinical and health psychology not elsewhere classified @ 40%
42 HEALTH SCIENCES > 4206 Public health > 420699 Public health not elsewhere classified @ 30%
SEO Codes: 20 HEALTH > 2004 Public health (excl. specific population health) > 200499 Public health (excl. specific population health) not elsewhere classified @ 30%
20 HEALTH > 2001 Clinical health > 200105 Treatment of human diseases and conditions @ 30%
28 EXPANDING KNOWLEDGE > 2801 Expanding knowledge > 280121 Expanding knowledge in psychology @ 40%
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