“My Autism is Linked with Everything”: at the Crossroads of Autism and Diabetes
Vinayagam, Ritwika, Tanner, Christopher, Harley, David, Karatella, Shamshad, and Brooker, Katie (2024) “My Autism is Linked with Everything”: at the Crossroads of Autism and Diabetes. Journal of Autism and Developmental Disorders. (In Press)
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Abstract
Autistic adults experience stark health disparities and difficulties accessing health care. Their realities of managing complex health conditions are unknown. Our research explored the experience of Autistic adults self-managing diabetes. Interviews with Autistic adults with diabetes and their support people were thematically analysed to identify three key themes. The Autistic experience influenced diabetes self-management, including autism-unique challenges and strengths. Participants prioritised avoiding Autistic burnout over diabetes self-management; mitigating the psychosocial pressures of neurotypical systems took precedence. Health professionals often separated autism and diabetes subsequently overlooking key factors impacting diabetes self-management. To better meet the needs of Autistic adults, diabetes care and health management more broadly should be considered within the context of autism, including supports for self-management during Autistic burnout.
| Item ID: | 80419 |
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| Item Type: | Article (Research - C1) |
| ISSN: | 1573-3432 |
| Keywords: | Autism, Autistic Burnout, Chronic Disease, Diabetes, Self-Management |
| Copyright Information: | © The Author(s) 2023. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. |
| Date Deposited: | 12 Feb 2024 05:29 |
| FoR Codes: | 42 HEALTH SCIENCES > 4206 Public health > 420602 Health equity @ 100% |
| SEO Codes: | 20 HEALTH > 2004 Public health (excl. specific population health) > 200407 Health status (incl. wellbeing) @ 100% |
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