Walking and moving around for Aboriginal families with Machado-Joseph disease living in the Top End of Australia
Carr, Jennifer Justine (2020) Walking and moving around for Aboriginal families with Machado-Joseph disease living in the Top End of Australia. PhD thesis, James Cook University.
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Abstract
Jennifer Carr worked with Aboriginal families with Machado-Joseph disease (MJD) in the Top End of Australia to co-design and pilot a physical activity and lifestyle program. The 'Staying Strong Toolbox' program significantly improved mobility, ataxia and quality of life, will be implemented in Australia and shared with families with MJD worldwide.
| Item ID: | 76809 |
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| Item Type: | Thesis (PhD) |
| Keywords: | Machado Joseph disease, mobility, physical activity, spinocerebellar ataxia, walking, Top End, Aboriginal Australian health, disability |
| Related URLs: | |
| Copyright Information: | Copyright © 2020 Jennifer Justine Carr. |
| Sensitivity Note: | Culturally sensitive. Aboriginal and Torres Strait Islander people are advised that this item may contain names and images of people who have passed away. |
| Additional Information: | For this thesis, Jennifer Carr received the Dean's Award for Excellence 2022. Three publications arising from this thesis are stored in ResearchOnline@JCU, at the time of processing. Please see the Related URLs. The publications are: [Chapter 3] Carr, Jennifer J., Lalara, Joyce, Lalara, Gayangwa, O'Hare, Gloria, Massey, Libby, Kenny, Nick, Pope, Kate E., Clough, Alan R., Lowell, Anne, and Barker, Ruth N. (2019) 'Staying strong on the inside and outside' to keep walking and moving around: perspectives from Aboriginal people with Machado Joseph Disease and their families from the Groote Eylandt Archipelago, Australia. PLoS ONE, 14 (3). e0212953. [Chapter 4] Carr, Jennifer J., Lalara, Joyce, Lalara, Gayangwa, Smith, Moira, Quaill, Jennifer, Clough, Alan R., Lowell, Anne, and Barker, Ruth N. (2019) What is the best way to keep walking and moving around for individuals with Machado-Joseph disease? A scoping review through the lens of Aboriginal families with Machado-Joseph disease in the Top End of Australia. BMJ Open, 9 (9). e032092. [Chapter 5] Carr, Jennifer J., Lalara, Joyce, Lalara, Gayangwa, Lalara, Gwen, Daniels, Bronwyn, Clough, Alan R., Lowell, Anne, and Barker, Ruth N. (2021) Staying Strong Toolbox: co-design of a physical activity and lifestyle program for Aboriginal families with Machado-Joseph disease in the Top End of Australia. PLoS ONE, 16 (2). e0244311. |
| Date Deposited: | 16 Nov 2022 04:39 |
| FoR Codes: | 32 BIOMEDICAL AND CLINICAL SCIENCES > 3209 Neurosciences > 320905 Neurology and neuromuscular diseases @ 40% 45 INDIGENOUS STUDIES > 4504 Aboriginal and Torres Strait Islander health and wellbeing > 450401 Aboriginal and Torres Strait Islander and disability @ 40% 42 HEALTH SCIENCES > 4201 Allied health and rehabilitation science > 420106 Physiotherapy @ 20% |
| SEO Codes: | 21 INDIGENOUS > 2103 Aboriginal and Torres Strait Islander health > 210302 Aboriginal and Torres Strait Islander health status and outcomes @ 35% 21 INDIGENOUS > 2103 Aboriginal and Torres Strait Islander health > 210303 Aboriginal and Torres Strait Islander health system performance @ 35% 20 HEALTH > 2004 Public health (excl. specific population health) > 200403 Disability and functional capacity @ 30% |
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