Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people
Luke, Joanne, Dalach, Philippa, Tuer, Lindsay, Savarirayan, Ravi, Ferdinand, Angeline, McGaughran, Julie, Kowal, Emma, Massey, Libby, Garvey, Gail, Dawkins, Hugh, Jenkins, Misty, Paradies, Yin, Pearson, Glenn, Stutterd, Chloe A., Baynam, Gareth, and Kelaher, Margaret (2022) Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people. Nature Communications, 13 (1). 4966.
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Abstract
Globally, there is a recognised need that all populations should be able to access the benefits of genomics and precision medicine. However, achieving this remains constrained by a paucity of data that quantifies access to clinical genomics, particularly amongst Indigenous populations. Using administrative data from clinical genetic health services across three Australian jurisdictions (states/territories), we investigate disparities in the scheduling and attendance of appointments among Aboriginal and/or Torres Strait Islander people, compared to non-Indigenous people. For 14,870 appointments scheduled between 2014–2018, adjusted Multivariate Poisson Regression models revealed that Aboriginal and/or Torres Strait Islander people were scheduled fewer appointments (IRR 0.73 [0.68–0.80], <0.001) and attended at lower rates (IRR 0.85 [0.78–0.93], <0.001). Within this population, adults, females, remote residents, and those presenting in relation to cancer or prenatal indications experienced the greatest disparity in access. These results provide important baseline data related to disparities in access to clinical genomics in Australia.
| Item ID: | 76354 |
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| Item Type: | Article (Research - C1) |
| ISSN: | 2041-1723 |
| Copyright Information: | ©The Author(s) 2022. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copyof this license, visit http://creativecommons.org/licenses/by/4.0/. |
| Funders: | National Health and Medical Research Council (NHMRC) |
| Projects and Grants: | NHMRC 114737, NHMRC 1176651 |
| Date Deposited: | 30 Mar 2023 01:13 |
| FoR Codes: | 45 INDIGENOUS STUDIES > 4504 Aboriginal and Torres Strait Islander health and wellbeing > 450409 Aboriginal and Torres Strait Islander health services @ 70% 42 HEALTH SCIENCES > 4203 Health services and systems > 420308 Health informatics and information systems @ 30% |
| SEO Codes: | 21 INDIGENOUS > 2103 Aboriginal and Torres Strait Islander health > 210303 Aboriginal and Torres Strait Islander health system performance @ 100% |
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