Tuberculosis care designed with barramarrany (family): Participatory action research that prioritised partnership, healthy housing and nutrition

Devlin, Sue, Ross, Wayne, Widders, Richard, McAvoy, Gregory, Browne, Kirsty, Lawrence, Kerryn, MacLaren, David, Massey, Peter D., and Judd, Jenni A. (2022) Tuberculosis care designed with barramarrany (family): Participatory action research that prioritised partnership, healthy housing and nutrition. Health Promotion Journal of Australia, 33 (3). pp. 724-735.

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Abstract

Issue addressed Ongoing tuberculosis (TB) transmission in Aboriginal communities in Australia is unfair and unacceptable. Redressing the inequity in TB affecting Aboriginal peoples is a priority in Australia’s Strategic Plan for Tuberculosis Control. Improving TB care needs not to just identify barriers but do something about them. Privileging the voices of Aboriginal people affected by TB is essential to identify effective and enabling strategies.

Methods A barramarrany (Aboriginal family) affected by recurring TB partnered with TB and Environmental Health teams using a participatory action research (PAR) methodology to improve housing health hardware and nutrition alongside biomedical TB prevention and care. A combination of the Ottawa Charter for Health Promotion; the International ‘End TB’ Strategy; and Aboriginal barramarrany leadership, worldviews and traditional values guided actions to reduce TB transmission.

Results Together the partners improved housing hardware and access to nutritious food, so the barramarrany could create a setting for good health and wellbeing. These actions supported the barramarrany to regain the physical, social and emotional wellbeing to deal with day-to-day challenges and stresses. The barramarrany were able to better sustain supportive relationships; grow, prepare and eat healthy food; and participate in healthcare activities. The barramarrany could better engage with medical approaches for TB and four barramarrany members completed TB treatment. The PAR action-project enabled and supported early TB diagnosis, treatment and prevention.

Conclusion Amplifying the voices of Aboriginal people and shared ownership of TB diagnosis, treatment and prevention by the barramarrany, was underpinned with principles of self-determination, capacity building and social justice. This PAR action-project provides further evidence that improving housing and nutrition can assist in Ending TB while improving wellbeing.

So what? Our action-research project undertaken within a PAR framework demonstrates the implementation of End TB Strategies by utilising the Ottawa Charter’s five actions to promote health, by understanding and centralising the social determinants of health.

Item ID: 76315
Item Type: Article (Research - C1)
ISSN: 1036-1073
Keywords: Aboriginal and Torres Strait Islanders; environmental health; health promotion; nutrition; participatory action research; partnership; social determinants of health; tuberculosis
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Copyright Information: © 2021 The Authors. Health Promotion Journal of Australia published by John Wiley & Sons Australia, Ltd on behalf of Australian Health Promotion Association. This is an open access article under the terms of the Creative Commons Attribution-Non Commercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
Date Deposited: 18 Oct 2022 22:53
FoR Codes: 42 HEALTH SCIENCES > 4206 Public health > 420603 Health promotion @ 50%
45 INDIGENOUS STUDIES > 4504 Aboriginal and Torres Strait Islander health and wellbeing > 450417 Aboriginal and Torres Strait Islander public health and wellbeing @ 25%
45 INDIGENOUS STUDIES > 4504 Aboriginal and Torres Strait Islander health and wellbeing > 450419 Aboriginal and Torres Strait Islander social determinants of health @ 25%
SEO Codes: 21 INDIGENOUS > 2103 Aboriginal and Torres Strait Islander health > 210301 Aboriginal and Torres Strait Islander determinants of health @ 40%
20 HEALTH > 2004 Public health (excl. specific population health) > 200407 Health status (incl. wellbeing) @ 30%
20 HEALTH > 2001 Clinical health > 200104 Prevention of human diseases and conditions @ 30%
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