Third-party disability in carers of people with dysphagia following non-surgical management for head and neck cancer

Nund, Rebecca L., Scarinci, Nerina A., Cartmill, Bena, Ward, Elizabeth C., Kuipers, Pim, and Porceddu, Sandro V. (2016) Third-party disability in carers of people with dysphagia following non-surgical management for head and neck cancer. Disability and Rehabilitation, 38 (5). pp. 462-471.

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Abstract

Purpose: Third-party disability pertains to the consequences of a persons impairment which impacts on the functioning and ability of their family members or significant others. With the emergence of research demonstrating the pervasive effects of dysphagia following head and neck cancer (HNC) on the carer, the aim of this study was to identify the International Classification of Functioning, Disability and Health (ICF) domains and categories that describe the third-party disability of carers of people with dysphagia following HNC. Method: Twelve carers of people with dysphagia following HNC participated in individual semi-structured, in-depth interviews. Categories and sub-categories identified from the qualitative analysis were mapped to the ICF using the established linking rules. Results: The majority of the categories and sub-categories from the qualitative analysis were successfully linked to the ICF with most linking to the Activities and Participation component. A number of contextual factors were also identified as impacting on the functioning of carers. Conclusions: The ICF can be successfully used to describe the third-party disability in carers of people with dysphagia following HNC management. This information could be used by clinicians, researchers and policy makers to help establish evidence-based guidelines that include carers in the assessment and management of dysphagia associated with HNC.Implications for RehabilitationClinical levels of distress and reduced quality of life have been associated with caring for a person with dysphagia following head and neck cancer.The flow-on effects of dysphagia experienced by a carer or close family member can be understood as a third-party disability, which impacts on their functioning, activities and participation in the context of the environment and personal factors.Using the ICF to describe the indirect effects of dysphagia on the carer may help to guide the assessment and support of this population, and advocate for the inclusion of the concerns of the carer in dysphagia management.

Item ID: 74219
Item Type: Article (Research - C1)
ISSN: 1464-5165
Keywords: Carers, dysphagia, head and neck cancer, ICF, radiotherapy, third-party disability
Copyright Information: © 2015 Informa UK Ltd.
Date Deposited: 18 May 2022 00:41
FoR Codes: 32 BIOMEDICAL AND CLINICAL SCIENCES > 3211 Oncology and carcinogenesis > 321104 Cancer therapy (excl. chemotherapy and radiation therapy) @ 20%
42 HEALTH SCIENCES > 4203 Health services and systems > 420318 People with disability @ 80%
SEO Codes: 23 LAW, POLITICS AND COMMUNITY SERVICES > 2301 Community services > 230101 Ability and disability @ 40%
20 HEALTH > 2003 Provision of health and support services > 200302 Community health care @ 60%
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