Scoping review of health outcomes for people with disabilities in user-led organisations

Crowe, Michael, and Sheppard, Lorraine (2021) Scoping review of health outcomes for people with disabilities in user-led organisations. Australian Journal of Primary Health, 27 (5). pp. 339-349.

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Abstract

A user-led organisation (ULO) may be defined as an organisation that is run and controlled by the people who use the services provided by that organisation. ULOs provide services to their members, such as information, advice, support, treatment and training. ULOs may also be involved in advocacy, influencing local service provision, government policy and public perceptions of disability. This scoping review concentrated on health outcomes achieved by ULOs for people with disabilities, including physical, sensory, cognitive, intellectual, neurological or mental health impairments. Based on a search of the academic literature up to 30 June 2020, 26 articles were included. Twenty-four articles were on ULOs for mood disorders, schizophrenia or psychosis, and there was one article each on ULOs for cross-disability and chronic non-malignant pain. There was some evidence that peer-run and inclusive ULOs for members with mood disorders, schizophrenia or psychosis can reduce the number of times people with these illnesses access traditional mental health services. There was no evidence that ULOs can replace traditional mental health services. Therefore, ULOs for mood disorders, schizophrenia or psychosis could be considered an adjunct to traditional mental health services, not a replacement. For other disabilities, a lack of evidence means that no recommendation can be made. However, the organisational structure of ULOs may be as important as the support and services offered.

Item ID: 69683
Item Type: Article (Research - C1)
ISSN: 1836-7399
Keywords: user-led organisation, ULO, disability, advocacy, National Disability Insurance Scheme, NDIS, user-controlled, user-driven, peer-led, consumer-led
Copyright Information: © La Trobe University 2021 Open Access CC BY-NC-ND
Date Deposited: 17 Oct 2021 23:44
FoR Codes: 42 HEALTH SCIENCES > 4203 Health services and systems > 420318 People with disability @ 100%
SEO Codes: 20 HEALTH > 2002 Evaluation of health and support services > 200202 Evaluation of health outcomes @ 100%
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