'Do you people even think about the lives you ruin?' Perspectives and influences on the provision of care for extreme preterm and periviable babies in North Queensland
Ireland, Susan Carol (2021) 'Do you people even think about the lives you ruin?' Perspectives and influences on the provision of care for extreme preterm and periviable babies in North Queensland. PhD thesis, James Cook University.
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Abstract
Susan Ireland studied the provision of care for periviable babies in North Queensland. Despite the pessimism from health care professionals about offering this care, parents were mostly appreciative and coped with subsequent disabilities, contextualising them in the baby's struggle for survival. Parents who regret the care provided voiced perinatal concerns, which, if heeded would have resulted in redirection of care. Findings from this study have led to changes in practise.
| Item ID: | 69391 |
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| Item Type: | Thesis (PhD) |
| Keywords: | attitudes, Australia, barriers, counselling, decision-making, ethics, extreme prematurity, facilitators, general paediatrics, implicit bias, intensive care, morbidity, mortality, neonatal, neonatology, outcomes, palliative care, parental autonomy, patient experience, perinatal care, periviable, pregnancy, prematurity, qualitative, regional location, resuscitation |
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| Copyright Information: | Copyright © 2021 Susan Carol Ireland. |
| Additional Information: | For this thesis, Carol Ireland received the Dean's Award for Excellence 2022 Six publications arising from this thesis are stored in ResearchOnline@JCU, at the time of processing. Please see the Related URLs. The publications are: Chapter 2: Ireland, Susan, Ray, Robin, Larkins, Sarah, and Woodward, Lynn (2015) Factors influencing the care provided for periviable babies in Australia: a narrative review. Reproductive Health, 12. 108. pp. 1-11. Chapter 4: Ireland, Susan, Larkins, Sarah, Ray, Robin, Woodward, Lynn, and Devine, Kirsty (2019) Adequacy of antenatal steroids, rather than place of birth, determines survival to discharge in extreme prematurity in North Queensland. Journal of Paediatrics and Child Health, 55 (2). pp. 205-212. Chapter 5: Ireland, Susan, Ray, Robin A., Larkins, Sarah, and Woodward, Lynn (2019) Perspectives of time: a qualitative study of the experiences of parents of critically ill newborns in the neonatal nursery in North Queensland interviewed several years after the admission. BMJ Open, 9 (5). e026344. Chapter 6: Ireland, Susan, Larkins, Sarah, Ray, Robin, and Woodward, Lynn (2020) Negativity about the outcomes of extreme prematurity a persistent problem - a survey of health care professionals across the North Queensland region. Maternal health, neonatology and perinatology, 6. 2. Chapter 6: Ireland, Susan, Ray, Robin, Larkins, Sarah, and Woodward, Lynn (2021) Exploring implicit bias in the perceived consequences of prematurity amongst health care providers in North Queensland – a constructivist grounded theory study. BMC Pregnancy and Childbirth, 21. 55. Chapter 7: Kilcullen, Meegan, and Ireland, Susan (2017) Palliative care in the neonatal unit: neonatal nursing staff perceptions of facilitators and barriers in a regional tertiary nursery. BMC Palliative Care, 16. 32. pp. 1-12. |
| Date Deposited: | 20 Sep 2021 01:40 |
| FoR Codes: | 32 BIOMEDICAL AND CLINICAL SCIENCES > 3213 Paediatrics > 321303 Neonatology @ 50% 32 BIOMEDICAL AND CLINICAL SCIENCES > 3215 Reproductive medicine > 321501 Foetal development and medicine @ 50% |
| SEO Codes: | 20 HEALTH > 2005 Specific population health (excl. Indigenous health) > 200506 Neonatal and child health @ 100% |
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