Alignment and mismatch in role relations at end-of-life: a constructivist grounded theory study

Lowrie, Daniel, Ray, Robin, Plummer, David, and Yau, Matthew (2019) Alignment and mismatch in role relations at end-of-life: a constructivist grounded theory study. Death Studies. (In Press)

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Abstract

In this Australian, constructivist grounded theory study, we undertook in-depth interviews with 11 dying people and 8 caregivers to examine their perspectives on role relations at end-of-life. We found that situations of role alignment between dying people and their family and friends support positive relational and practical outcomes, whereas role mismatch can cause considerable distress. Factors contributing to role mismatch at end-of-life were: dying people and their caregivers' efforts to shield each other from emotional harm; fear of social exclusion; and unwanted focus on the dying identity. Our findings highlight a need for flexibility and adaptability in end-of-life role relations.

Item ID: 59774
Item Type: Article (Research - C1)
ISSN: 1091-7683
Keywords: role relations, dying, grounded theory, role mismatch
Date Deposited: 14 Aug 2019 02:39
FoR Codes: 11 MEDICAL AND HEALTH SCIENCES > 1199 Other Medical and Health Sciences > 119999 Medical and Health Sciences not elsewhere classified @ 100%
SEO Codes: 92 HEALTH > 9202 Health and Support Services > 920211 Palliative Care @ 70%
92 HEALTH > 9202 Health and Support Services > 920202 Carer Health @ 30%
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