Alignment and mismatch in role relations at end-of-life: a constructivist grounded theory study
Lowrie, Daniel, Ray, Robin, Plummer, David, and Yau, Matthew (2021) Alignment and mismatch in role relations at end-of-life: a constructivist grounded theory study. Death Studies, 45 (5). pp. 361-370.
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Abstract
In this Australian, constructivist grounded theory study, we undertook in-depth interviews with 11 dying people and 8 caregivers to examine their perspectives on role relations at end-of-life. We found that situations of role alignment between dying people and their family and friends support positive relational and practical outcomes, whereas role mismatch can cause considerable distress. Factors contributing to role mismatch at end-of-life were: dying people and their caregivers' efforts to shield each other from emotional harm; fear of social exclusion; and unwanted focus on the dying identity. Our findings highlight a need for flexibility and adaptability in end-of-life role relations.
| Item ID: | 59774 |
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| Item Type: | Article (Research - C1) |
| ISSN: | 1091-7683 |
| Keywords: | role relations, dying, grounded theory, role mismatch |
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| Copyright Information: | Accepted Version may be made open access in an Institutional Repository without embargo. |
| Additional Information: | A version of this publication was included as Chapter 5 of the following PhD thesis: Lowrie, Daniel Leslie (2020) An examination of the process of role change at end of life in a contemporary, regional Australian context. PhD thesis, James Cook University, which is available Open Access in ResearchOnline@JCU. Please see the Related URLs for access. |
| Date Deposited: | 14 Aug 2019 02:39 |
| FoR Codes: | 42 HEALTH SCIENCES > 4203 Health services and systems > 420316 Palliative care @ 100% |
| SEO Codes: | 92 HEALTH > 9202 Health and Support Services > 920211 Palliative Care @ 70% 92 HEALTH > 9202 Health and Support Services > 920202 Carer Health @ 30% |
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