Focusing on families' experiences of health care: choosing a qualitative research design

Hayles, Emily, Harvey, Desley, Plummer, David, and Jones, Anne (2015) Focusing on families' experiences of health care: choosing a qualitative research design. Journal on Developmental Disabilities, 21 (2). pp. 110-118.

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Patient and carer experiences of health care are important for service improvements. However, the literature available often evaluates experiences from a health professional perspective rather than exploring the perspective of patients or families. Health care of children with cerebral palsy directly involves and impacts families. Accordingly, research exploring experiences of health care for this group of patients and carers should adopt a family perspective. This article provides an illustrative example of the decision- making processes that guided selection of social constructivism and grounded theory methodology for a research project aiming to capture family experiences of health care for children with cerebral palsy in a regional area of Australia. Adopting a family approach for the investigation of experiences of health care should be considered for future research in the area of paediatrics, but also for other areas of health in which the family plays a key role.

Item ID: 43158
Item Type: Article (Research - C1)
ISSN: 1917-7909
Keywords: research methodology, grounded theory, health care experience, paediatrics, cerebral palsy
Funders: Mackay Hospital and Heath Service
Date Deposited: 06 Apr 2016 02:24
FoR Codes: 11 MEDICAL AND HEALTH SCIENCES > 1103 Clinical Sciences > 110317 Physiotherapy @ 30%
11 MEDICAL AND HEALTH SCIENCES > 1114 Paediatrics and Reproductive Medicine > 111403 Paediatrics @ 30%
11 MEDICAL AND HEALTH SCIENCES > 1199 Other Medical and Health Sciences > 119999 Medical and Health Sciences not elsewhere classified @ 40%
SEO Codes: 92 HEALTH > 9202 Health and Support Services > 920201 Allied Health Therapies (excl. Mental Health Services) @ 40%
92 HEALTH > 9205 Specific Population Health (excl. Indigenous Health) > 920501 Child Health @ 30%
92 HEALTH > 9204 Public Health (excl. Specific Population Health) > 920403 Disability and Functional Capacity @ 30%
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