Disability and opportunity: a case study exploring the support needs and long term care options for a person with multiple sclerosis

Edgar, Eleanor Mary (2010) Disability and opportunity: a case study exploring the support needs and long term care options for a person with multiple sclerosis. Masters (Research) thesis, James Cook University.

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Abstract

This thesis reports on one family's experience when a family member, diagnosed with Multiple Sclerosis, is cared for at home. Particular emphasis is paid to the availability of support services and carer education; the exploration of future care options; and the role of social work in the support of key stakeholders.

A phenomenological approach is used to prioritise the thoughts, opinions and interpretations of the participants. Data was collected through the use of questionnaires and semi-structured interviews with the family member diagnosed with Multiple Sclerosis, his partner and primary carer, other family members and paid carers. Findings discussed in this thesis identify that the woman partner who takes the role of primary carer carries a significant role not only in direct care provision but also in the "project management" required to facilitate home based care. Enhanced carer support is highlighted as a significant need for the family unit, if residential care is to be avoided.

The thesis also highlights the clear opportunity for Social Work as a profession to support and assist families as they work toward achieving adequate services and support whilst concurrently undertaking the processes of transition and adjustment that take place when responding to the chronic care of a family member. However there is evidence to suggest that these opportunities are not taken up and social work is not a source of support for this family.

Item ID: 29967
Item Type: Thesis (Masters (Research))
Keywords: self management; disability; multiple sclerosis; carer education
Date Deposited: 30 Oct 2013 01:33
FoR Codes: 16 STUDIES IN HUMAN SOCIETY > 1607 Social Work > 160701 Clinical Social Work Practice @ 100%
SEO Codes: 94 LAW, POLITICS AND COMMUNITY SERVICES > 9401 Community Service (excl. Work) > 940101 Ability and Disability @ 100%
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